Fragile X Fragile Hope: Finding Joy In Parenting A Child with Special Needs

By Elizabeth Griffin (Author)
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Item Description...

For the multitudes of parents facing the challenge of raising a child with special needs, Fragile X, Fragile Hope affirms that they can survive the devastation of the unexpected diagnosis, the lost dreams, the confusion of treatment options, the sleep deprivation, the painful misunderstandings of friends and family--and that more than survive, they can find a way through this chronic stress and grief back to hope and joy. Elizabeth Griffin's stunning, honest book shows how parents can move from profound grief to embracing parenting a special needs child. Elizabeth's son Zack is a Fragile X child with autistic tendencies. Like most families, the Griffin family's prayers were not answered with a cure for their child, but rather with the miracle of God's sustaining grace that carries them through each day. Elizabeth says, We experience so much joy in parenting Zack, despite our heartache over his limitations.... I have to admit that prior to Zack's entrance into my life, I viewed children with special needs as a tragic burden. I remember hearing a speaker on the radio say they wouldn't trade the experience of having a special needs child for anything. I thought, "Liar You're just saying that to be positive. You don't really mean it " Now that I've worked through the initial grief, anger, and fear that Zack's diagnosis brought, I have to agree with the man on the radio. There is a deep sense of love and joy that I've found in parenting a special needs child that I never expected, and that I am grateful to have in my life. Fragile X, Fragile Hope helps all of us grapple with our faith in the midst of adversity.


Item Specifications...

Pages   112
Dimensions:   Length: 8.98" Width: 6.08" Height: 0.29"
Weight:   0.37 lbs.
Binding  Softcover
Release Date   Aug 1, 2004
Publisher   Emerald Books
ISBN  1932096167  
EAN  9781932096163  


Availability  2 units.
Availability accurate as of May 26, 2012 02:48.
Usually ships within one to two business days from La Vergne, TN.
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Product Categories
1Books > Subjects > Health, Mind & Body > Personal Health > Children's Health > Autism & Asperger's Syndrome   [652  similar products]
2Books > Subjects > Health, Mind & Body > Personal Health > Children's Health > Special Needs Children   [1237  similar products]
3Books > Subjects > Medicine > Basic Science > Genetics   [575  similar products]
4Books > Subjects > Medicine > General   [25043  similar products]
5Books > Subjects > Parenting & Families > Parenting > General   [3924  similar products]
6Books > Subjects > Parenting & Families > Special Needs > General   [850  similar products]
7Books > Subjects > Professional & Technical > Medical > Basic Sciences > Genetics   [605  similar products]



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Reviews - What do our customers think?
Very good and encouraging  Jun 9, 2008
As the mother of a newly diagnosed child with Fragile X, I found this book very encouraging. It doesn't hide the difficulties of life with a child with special needs, but she reminded me that there is hope.

It was a fairly easy read. I think I finished it in one day.
 
Not Just for Special Needs Parents  Nov 10, 2004
First off, I'm a bit biased as Elizabeth is my sister-in-law and Zack is my nephew. But even so, I was wasn't expecting to relate much with Elizabeth except in terms of family history and common experiences. I found however that my wife and I had shared many of the same frustrations, worries and anxieties with our own three kids, albeit on a much smaller scale. My point is that I think all parents and even would-be parents would get something out of this book. They will relate to much of Elizabeth's story and at the same time will gain valuable perspective on special-needs families. I'd also say this book is a must for any child care professional. Finally, it's a great read! Elizabeth has a very rich, dynamic and engaging writing style that draws you in. I could barely put it down and finished it in two sittings. Get a copy for yourself and one for a freind!
 

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